First published on March 21, 2012 at 8:02 p.m.
Hi everyone! ♥ Today I had my second IVIg treatment in attempt to halt all of the nerve damage brought on by the Guillain–Barré Syndrome. Treatments have been going well for the most part - yesterday was a breeze, but today the IVIg sort of burned out the inside of my vein, so they had to start a new IV site on my other arm. My arms are slowly amassing a beautiful array of bruises that bring new meaning to the phrase Purple Mountains Majesties ♥. I was slated to go home today but circumstances being as they are it was decided that I will actually need to stay here for the full length of my IVIg treatment, which should end sometime on Saturday. I am actually okay with this though, because my house is in no way user-friendly for someone who is unable to safely tackle stairs. I'm still walking like Bambi, as a newborn, on ice, with his eyes closed, and I appreciate the maneuverability of the set-up I have here. Also, because we live way out in the country, it has been easier for all of my wonderfully supportive and loving visitors to find me here :) Today I started Physical Therapy for reals, and it was crazy to find myself struggling to do something as simple as walk backwards, or sit on a chair and lift my leg up parallel to the floor without using my back/abs/arms to help. Thankfully I just think it's sort of funny the way I hobble around like a drunken grandmother, complete with a shiny bronze cane. My Physical Therapist assured me that even thought it is hard to do some really simple things now, between my treatments and the strength I already had in my legs, I will eventually be able to walk and run normally again, even if it takes awhile. All we have to wait on are those little nerve coverings to grow back again so that my nerves can fire messages back and forth to my muscles they way the are supposed to. Pain and discomfort continues to come and go, but I honestly have all of you to thank for helping me cope with all of that - your phone calls and visits and posts lift me up EVERY day, minute, and hour. It really is powerful. I feel SO GOOD about my road to recovery, and that has so much to do with your love and support! I'm not even scared, because I know that no matter what happens, I have the most amazing net of love ever to catch me if ever I fall ♥. I will keep updating things on here, LIVE from Room 8247 located in beautiful St. Mary's Hospital ;) I'd like to thank my Aunt Jill Hinks for sneaking in while working in the building, Abner Martin for bringing me a gorgeous vase full of roses (I love roses! ♥), and Sarah Weitkuhn for surprising me with a delicious back scratcher (bonus: she's working the overnight here, and we have plans to have her sneak into my room so that we can watch The Renegade Running Group's Freeze Yer Gizzard Blizzard movie that Alicia made). I'd also like to thank Katelyn Esterby for introducing me to the Guy On A Buffalo series - you have indirectly made my wonderful father and I burst out into song sporadically throughout the entire day :) ALSO! I would like to thank Kali Benrud and her mom for calling me all the way from Australia! Amazing ♥. Thank you all so much again for all of you thoughts and hugs! They really do help keep me sane, strong, and smiling ♥.
No comments:
Post a Comment